Thursday, July 30, 2009
Monday, July 27, 2009
Justin
We got the diagnosis on Justin, it is Mitochondrial Myopathy. It is a pretty rare and complicated disease. I feel like I have been in a fog since the Dr. told us, this was so much easier when it was me. It seems like it is all me and Marce talk about right now, our new reality. Reading about the disease is my new past time. We are heartbroken. Our son is this big, strong beautiful young man and we are devastated that he has to go through any of this. Watching him grow up into this man right in front of our eyes has been such a gift, I just wish I can take this from him and say "go on mejio, I will do this for you. The Dr appointments, the tests, the physical therapy, the pain, take the medications, all of it" But I can't. All I can do is stand next to him and hold his hand and tell him how much I love him. It just doesn't feel enough. We will encourage him to stay strong, enjoy every opportunity that comes his way. Live a great life right now! Don't wait for anything! Keep making that amazing music that you do so well. Keep your great sense of humor. Keep working to reach your goals! Keep inspiring the people around you. This disease will not stop you! It does not define you! You will always be the wonderful person you are now. And we will always love you!
Monday, July 20, 2009
Hello Monday....
Friday, July 17, 2009
16 Years!
Since we were practically children when we got married, we had a whole lot of growing and creating to do. So to him.....thank you for giving me and continuing to give me the freedom, security, support and love that I needed in my ever evolving creative process.
Tuesday, July 14, 2009
A week in the life of....
Deb to Dexter: "What the f@*# is scrapbooking?"
Dexter in his matter of fact way of speaking: "The tradition of putting photos and memorabilia into a family keepsake albums, along with relevant journaling"
I laughed and laughed and laughed! I love it! Maybe you just had to be there.....or be a scrapbooker:)
Last year I did Alie Edwards "a week in the life of" and here are a couple of pages from my finished album. This was a really fun project and the whole family joined in with me. It was such a great reminder to document your life and celebrate the everyday!
Putting these on my blog just made me want a 12x12 scanner even more!!!!! I will add the rest of the mini later when I have more time to play.

I started my week of documenting on a Monday, which worked out to be a very typical Monday. Your suppose to do a regular, typical week of you life to show your everyday stuff. I did find that I love my everyday and find comfort in my everyday rituals. I am so very blessed that everyday I have, I spend with my favorite people in the world!!! Lucky me. Cant wait to post the rest of this album!!!!
Mattias cracked me up last night!
Mattias: "Mom I think I want to be a lawyer when I grow up, they make good money on the legal fees that they charge. Do you think I should be a lawyer for Barnes and Noble or Starbucks?"
Me: "Why are you thinking of only those two companies?"
Mattias: "Well I really like Barnes and Noble and I'm GOING to like Starbucks one day and I can bring you home a coffee every night"
It cracks me up that he sees how much I love coffee and he figures that its in his future as well. I also love that my happiness is helping him decide what career choice to make....yeah I know he's 9. When he is really making career choices I will be at the bottom of his concerns....I'm OK with that! I will enjoy him while I have him:)
Monday, July 6, 2009
4th of July ~ 2009
Mattias enjoying some sparklers
Brings me back to my childhood..hanging with my cousins
"this is our fate, I'm yours!!" Every time I think about our little sing a long I just smile and smile! Like Nana said "Jonathan and Kristine, thank you for giving us Donavin!"





