I spoke with the Dr.'s office yesterday regarding some of Justin's test results. First of all his Spine X-ray was normal(he wanted to rule out any spinal injuries) 2nd his CK levels have dropped again, they are now 1327. The first time we ran them they were 3113. What does this mean????? This last Dr. told us that with Muscular Dystrophy you would not have your CK levels decrease, they would stay the same or get higher. So I'm praying for a miracle right now. His neurologist sent more of his muscle tissue away for another rare genetic test for a disease that I'm praying he doesn't have! June 23rd he will have another EMG this time the appt. is for 4 hours. So now we wait again...... and I'm praying for my son.
This picture was in Vieques, Puerto Rico. This was a good day. I am so thankful to my family here and in Puerto Rico that helped us have this day and many other wonderful days on our vacation, I love them all!
